Having kids is the most rewarding thing for any couple who is trying to conceive plus adding the news of them being twins is a surprisingly pleasing feeling in the world. The same happened with Joey & Chrissy Bernal. The couple was expecting twins but little did they know that it was going to turn out a bit different than usual expectancies around the birth of the twins.
The couple was blessed with two beautiful daughters but with that news, they were also given another news stating that their identical twins had some complications where one of their daughters had been born with a medical condition known as Primordial Dwarfism.
Primordial Dwarfism is a medical condition that is very rare and there are approximately only 200 known cases currently diagnosed in the world with each falling into five different categories of dwarfism. Children born with this condition show different symptoms majorly including:
- Small body size & slow growth starting from the fetus and continuing to childhood and adult age.
- Really less weight gain as compared to other people of the same age.
- Small brain and head
- Squeaky Voice
- Verbal Dyspraxia
Amongst the twins, Sienna Bernal was the one who had dwarfism. It was not her medical condition that was heartbreaking for the parents, but the news that she might not live more than 24 hours the day she was born plus they were also told that even if Sienna will make it past 24 hours and live longer, she will be just like a vegetable.
Beating all the odds, Sienna survived the 24 hours and beyond that, and today she is 21 years old identical twin to her sister Sierra Bernal who is completely normal.
Sienna Bernal is 4 feet and 4 inches tall which might not seem that short for being a dwarf, but she was also born with another medical condition known as Dandy-Walker syndrome which causes abnormal brain growth.
Somehow her brain replugged itself and the condition was quite reduced in her case.
Sienna is amongst the 200 known cases of Primordial Dwarfism. Though dwarfism has five major types and every person having it expects to have different symptoms, but in the case of Sienna, doctors are not really sure about the type of Primordial Dwarfism that she has. Her condition is still unique and unknown.
Sienna's father whilst talking to Barcroft Tv said:
“She has days when she's literally said to me ‘Dad, why did God make me so small?’ And I just say ‘maybe if he made you full-size you’d try to take over the world."
Though Sienna becomes sad or curious about her condition at times, she never lets go of her beautiful soul and spirit that only depicts not giving up and achieving the impossible.
The major thing that she finds difficult or irked about is when people mistake her for being an eight-year-old or they think of her as being the daughter of her identical twin. Talking about this very fact, her twin sister Sierra told Barcroft Tv:
“Sometimes whenever people find out we're twins they’ll ask ‘how old is she?’ So a lot of times even after you've established that we’re twins they'll ask Sienna if she's younger. I’m like ‘that’s how twins work, we’re the exact same age’. And even sometimes people think she’s my daughter.”
Sierra Bernal is the twin of Sienna Bernal with an approximate height of 5 feet and 7 inches. Sierra has always been the biggest support of twin Sienna and she believes that no one can mess around with her sister because she is so protective of her always.
Both sisters love to spend quality time together and they do everything together from playing games to watching their favorite movies on tv together. They both are pretty close to each other.
Whilst Sierra & Sienna both love to spend time together and do similar activities, but their passions for their future and profession are totally different. Sierra is passionate about music and already having her career in country singing in momentum, she is now set to continue this journey of singing in the future as well and make a successful career out of it.
On the other hand, Sienna is really passionate about mermaids and she is inclined towards getting her college degree and publishing her own book. Other than that she also regularly posts videos in her own new show she calls "Small Talk With Sinny" on Instagram.
Whilst Sierra is pursuing her career in music that is not an easy job itself to gain recognization as an artist, Sienna is also accomplishing a lot by taking small steps and proving the world wrong by doing everything she was told she might not be able to do.
This twin pair is the only pair in the world that has the case of Primordial Dwarfism with the aspect of Sienna's being the newest and not yet known type of Primordial Dwarfism.
Well, this twin pair has definitely amazed us by showing their uniqueness and adding new meaning to life lessons and learning. We for sure have learned from them and especially Sienna that one should follow their heart and do whatever they want to do and be whoever they want to be regardless of anything either judgemental society or a medical condition.
You can always beat the odds and make it to success based on your own determination and motivation.
If you liked this story then do share it with your friends and family and show some love to the Twins and the whole world comprising of people with different abilities who need more love and acceptance than doubts and judgment.