“Everyone’s faces are always hidden from me by a bright flash of light. Sometimes it is possible to see a smile or just the eyes, but never the whole face.”
This excerpt is from a beautiful caption of Lena’s recent most Instagram post, where she is talking about the rare condition of Face Blindness that she has since childhood. I happened to learn about Lena from a friend and an article about her, which intirgued me to contact her personally and she was kind enough to respond back and answer some of the questions with permission to publish them along with her pictures.
Lena Ash is a beautiful thirty years old woman. She is a wife and a mother to a wonderful five years old son as well. Lena suffers from a rare condition which is known as "Prosopagnosia".
Lena had never really tried to figure out what she was facing utill the age of 30 years. It has only been one year since she was able to find out the condition that had impacted her life all these years and that will stay with her for a long time.
Till finding out about Prosopagnosia Lena used to stay quiet and shy about her condition, with a worry deep inside that always made her feel awkward and self conflicted. She said that her parents also could never believe her when she tried to explain her condition in childhood and she herself could never blame them as there was not enough knowledge back then or nobody had access to google and all the information like we have today.
Lena has a wonderful family, she lives in a small town in Russia with her beautiful family including a loving husband and a wonderful son who is five years old. Lena does face the issue to recognize her own self, let alone to talk about recognizing her husband and son.
When asked about how it affects her personal life and relationships, she said:
Life is not as easy as it seems with face blindness. For Lena her husband will be a different person if he removes his beard and she will not be able to recognize his face. She might not even recognize her own face in the mirror or in the pictures with different makeup, hair and style.
Lena is now on Instagram and she is trying to openly talk about Face Blindness aka Prosopagnosia. In her Bio on Instagram, she states herself as an Embassador of Prosopagnosia. She now talks about it with her beautifully captured posts. During a conversation with her she said:
Lena has really inspired everyone a lot by sharing her story with the world. Although her condition of Face Blindness is really tough to live with, she has proven with her devotion towards life and relationships that nothing can stop one from living their best life.
For Lena the most good thing that came out of her condition was that she can not remember the negative persons or memories that came into her life. This for sure is a good thing to have experience and we are really inspired by her outlook on life and her own personality. We wish her all the happiness and success for her life and her family's.
For those of you who are facing same condition of Face Blindness or you know someone who is going through this phase of life, make sure to be their support and do follow Lena's Instagram for further updates on her life and Prosopagnosia.
Your hardest times often lead to the greatest moments of you life. Keep going. Tough situations build strong people in the end.
Roy T. Bennett